Although it is treatable, Sickle Cell Disease, the most common genetic blood disorder in the world.
Although it is treatable, Sickle Cell Disease, the most common genetic blood disorder in the world, affects hundreds of thousands of babies each year, many of whom will not live to be five years old. The purpose of World Sickle Cell Day is to spread knowledge about the disease, advance research, and offer families in need hope and assistance.
History of World Sickle Cell Day Since 2008, World Sickle Cell Day has been held annually to help spread awareness of Sickle Cell Disease (SCD) and the challenges faced by those who suffer from it and their families.
The day was chosen to commemorate the day that the General Assembly of the United Nations officially adopted a resolution recognizing Sickle Cell Disease as a public health issue.
This blood disorder, formerly known as Sickle Cell Anemia, affects millions of people worldwide, including children and adults. It is a possibly lethal sickness and, as per the World Wellbeing Association (WHO), is one of the primary drivers of unexpected passing among kids younger than five in different African nations.
World Sickle Cell Day is observed by the Centers for Disease Control and Prevention (CDC) in the United States by spreading information about the disease and highlighting helpful resources for SCD sufferers.
Red blood cells with the shape of a C, or "sickle," are characteristic of sickle cell disease. Numerous health issues result from the absence of healthy red blood cells and the early death of these unhealthy cells. However, there is reason for optimism because children with SCD who are born in areas with access to medical care stand a very good chance of developing into normal, healthy adults.
Despite the fact that SCD is a leading cause of death all over the world, it is not contagious and can even be completely cured in some patients. However, the treatment necessitates a very difficult bone marrow transplant, which can be extremely risky and also prohibitively expensive for many people with the disease.
The purpose of World Sickle Cell Day is to spread accurate information regarding this condition, including its causes and treatments. The hope and purpose of World Sickle Cell Day is that better care and fewer deaths can be prevented through increased public awareness.
How to Celebrate World Sickle Cell Day Contribute to the solution by educating yourself about sickle cell disease and raising awareness about it. Observe World Sickle Cell Day in one of these ways:
Participate in a World Sickle Cell Day Event Some health organizations that support or treat sickle cell disease will host educational events in honor of World Sickle Cell Day. Find out how to support charities and foundations that help people with Sickle Cell Disease by speaking with local health care providers or medical educators. Take the kids to a school event, a lecture, or another event to show support for the day.
Learn More About Sickle Cell Disease If you can't make it to a World Sickle Cell Day event, you might want to spend the day researching the disease, learning about its symptoms, and learning more about how it affects the world.
To get you started, here are some significant facts about sickle cell disease that you might want to share to help spread awareness for the day:
Sickle cell disease is passed down from parent to child when one gene is passed down from each parent.
Sickle cell trait (SCT) is passed on to any biological children by those who inherit only one gene, but they do not develop the disease.
SCD frequently results in anemia, which frequently sends children to the hospital's emergency department several times per year. A blood transfusion can be used to treat severe anemia.
Important frequently asked questions: Why is World Sickle Cell Day observed?
World Sickle Cell Awareness Day was established on December 22, 2008, by a resolution passed by the United Nations General Assembly. The resolution designated June 19 as the official day to raise awareness of sickle cell disease worldwide and recognized sickle cell disease as a global health concern.
What is the World Sickle Cell Day 2023 theme?
Additionally, on Tuesday, June 20, 2023, there will be a public lecture on WSDC with the theme "Sickle cell disorder is not a death sentence," which serves as the flagship event for the WSCD.
What gives it the name sickle cell?
Red blood cells in good health are pliable enough to pass through even the smallest blood vessels. The abnormal hemoglobin in sickle cell disease causes the red blood cells to be rigid and shaped like a "C" or "sickle," which is the disease's name.
What are the five sickle cell disease outbreaks?
The expression "sickle cell emergency" is utilized to portray a few intense circumstances, for example, the vaso-occlusive emergency (intense excruciating emergency), aplastic emergency, splenic sequestration emergency, hyperhemolytic emergency, hepatic emergency, dactylitis, and intense chest condition.
What is the name of the immunization for sickle cell?
The Haemophilus influenzae type b (Hib) vaccine, the pneumococcal vaccines (PCV7, PCV13, and PPSV23), the meningococcal vaccines for serogroups A, C, W, and Y (MenACWY), and the meningococcal vaccine for serogroup B (MenB), are included in the specific vaccination schedule that the ACIP recommends for sickle cell disease patients.
Who is the pioneer in the field of sickle cell research?
Raymond Scott Dr. Scott has been hailed as the "father of sickle cell disease" in the United States. He also carried out ground-breaking research while standing up for his patients in a time when there was a lot of discrimination.
What gives it the name sickle cell?
Red blood cells in good health are pliable enough to pass through even the smallest blood vessels. The abnormal hemoglobin in sickle cell disease causes the red blood cells to be rigid and shaped like a "C" or "sickle," which is the disease's name.
