On April 17, World Hemophilia Day is observed annually. The day is observed to raise awareness of hemophilia and assist those with the condition in achieving a better future. Due to a lack of sufficient blood-clotting proteins, a rare condition known as hemophilia prevents blood from properly clotting. Currently, World Hemophilia Day is observed worldwide to enhance diagnosis and accessibility to specialized treatment. World Hemophilia Day aims to bring people from all over the world who suffer from bleeding disorders together.
HISTORY OF WORLD HEMOPHILIA DAY
Hemophilia was recognized in the tenth century when specialists started to check out people, especially men, who were draining lavishly after minor wounds. At the time, it was known as Abulcasis. Tragically, a careful examination concerning the sickness was unrealistic because of the restrictions of innovation at that point. Hemophilia is thought to have affected a number of well-known historical figures, particularly European royalty. Aspirin was used to treat them, which made the hemophiliac's blood even thinner and made the symptoms worse.
In 1803, Philadelphia physician Dr. John Conrad Otto began conducting more in-depth research into individuals he dubbed "bleeders," and he discovered that the condition was inherited from healthy mothers to healthy boys. Erik von Willebrand, a Finnish doctor, composed a paper in 1926 depicting 'pseudohemophilia,' a draining disease that influences all kinds of people similarly. In the end, the condition was given the name Von Willebrand Disease in honor of him. Inga Marie Nilsson and associates at Malmo College Clinic in Sweden found that the sickness was brought about by low or lacking degrees of Von Willebrand factor in 1957. In 1937, hemophilia was officially divided into two categories: A and B. Although there is currently no known treatment for hemophilia, one can manage the condition by regularly injecting clotting factors to prevent spontaneous bleeding. The World League of Hemophilia laid out World Hemophilia Day in 1989, and April 17 was chosen to honor the birthday of the association's pioneer, Straight to the point Schnabel. The day's objective is to raise funds for those who cannot afford treatment and raise awareness of the condition and other bleeding diseases.
WORLD HEMOPHILIA DAY TIMELINE: 1803 Dr. John Conrad Starts to Study "Bleeders" Dr. John Conrad Otto, who is from Philadelphia, begins to study the people he refers to as "bleeders" more deeply. He finds that the condition is a genetic one that is passed down from healthy mothers to healthy boys.
1926
Von Willebrand Composes a Paper on Hemophilia
Dr. Erik von Willebrand, a Finnish doctor, composes a paper portraying 'pseudohemophilia,' a draining disease that similarly influences people.
Dr. Alfredo Pavlovsky of Argentina identifies two types of hemophilia in his laboratory in 1937: A and B. The World Federation of Hemophilia establishes World Hemophilia Day in 1989, and the date of April 17 is chosen to commemorate the birthday of the organization's founder, Frank Schnabel.
FAQs for World Hemophilia Day: How severe are bleeding disorders?
Minor cuts are commonly not no joking matter. Internal bleeding, particularly in the knees, ankles, and elbows, is the primary concern for people with severe hemophilia. Interior draining may hurt your organs and tissues and be deadly.
Can hemophilia A be cured?
There is currently no treatment for hemophilia, a rare bleeding disorder.
Can blood donors with hemophilia?
Due to the possibility of bleeding, most blood collection centers decline donors who have hemophilia. Due to the possibility of virus infection, other facilities refuse anyone who has previously received factor concentrate. Maybe generally fundamental, you shouldn't give blood since you want to protect your veins.
The most effective method to Notice WORLD HEMOPHILIA DAY
Share your story
Share your anecdote about what inherited draining illnesses have meant for you or somebody you know via virtual entertainment. Read the accounts of other individuals using the hashtag #WorldHemophiliaDay.
Contribute to the study of hemophilia You can also mark this day by visiting https://wfh.org/, where you can make monetary contributions to the study of this condition.
Turn on a red light to commemorate World Hemophilia Day and raise awareness for all people with bleeding disorders. You can do this in your home, place of business, or even a local landmark. A means of raising awareness is this.
Some interesting facts about the genetics of hemophilia Hemophilia is a condition that is passed down from mother to child.
A milder form of hemophilia, hemophilia C is less dangerous than hemophilia A and B, and individuals with hemophilia C do not frequently require intravenous clotting factor.
It is extremely uncommon for women to be born with hemophilia because of the way the illness is passed down genetically. It mostly affects men, so women rarely have it.
Clotting factor tests, also referred to as factor assays, are required to diagnose hemophilia and a bleeding disorder.
Hemophilia A is the most common type, affecting one in every 5,000 boys, followed by hemophilia B, which affects one in every 25,000 boys, and hemophilia C, which affects one in every 100,000 boys.
WHAT MAKES WORLD HEMOPHILIA DAY SO IMPORTANT? It helps spread awareness of this rare but serious disease. Delays in getting a diagnosis are caused by a lack of knowledge. The death toll may rise as a result of a lack of awareness.
It helps fund research World Hemophilia Day contributes to the funding of research into this condition. Consequently, we can improve our management skills.
World Hemophilia Day makes it possible for people who have the condition to connect with one another and lends support to those who are affected. Additionally, it lets the rest of the world show their support.
Why celebrate World Hemophilia Day?
Every year, on April 17, World Haemophilia Day is observed to raise awareness of haemophilia and other inherited bleeding disorders.
Frank Schnabel, the founder of the World Federation of Haemophilia (WHF), is honored on this day.
The theme for this year (2022) is "Access for All: Partnership. Policy. Progress. Getting in touch with your government and incorporating inherited bleeding disorders into national policy
What is Hemophilia?
About: Hemophilia is an ailment, for the most part acquired, in which the capacity of blood to cluster is seriously decreased, so that even a minor injury can cause extreme dying.
A change or mutation in one of the genes that tells the body how to make the clotting factor proteins that make blood clots occurs in hemophilia.
The clotting protein may either function improperly or be absent entirely due to this change or mutation. These qualities are situated on the X chromosome.
Men are more at risk for haemophilia than women because of the genetics involved in determining a child's sex.
About one in 10,000 people are born with it, making it a very rare condition.
Types:
Haemophilia A, the most common form of hemophilia, occurs when a person lacks sufficient factor VIII (factor 8) for clotting.
Haemophilia B affects fewer people. An individual with Hemophilia B needs more element IX (factor nine).
One in every 5,000 births has haemophilia A, while one in every 20,000 births has haemophilia B.
Symptoms:
Numerous bruises
bleeding into the joints and muscles.
sudden internal bleeding for no apparent reason, also known as spontaneous bleeding.
prolonged bleeding following surgery, tooth removal, or a cut.
Treatment:
Replacement Therapy is the most common treatment for haemophilia.
A vein is slowly dripped or injected with concentrations of clotting factor VIII (for Haemophilia A) or IX (for Haemophilia B). These infusions aid in the replacement of low or absent clotting factor.
What is the Indian Haemophilia Scenario?
Over 1.96 lakh people worldwide had hemophilia in 2017, according to the World Federation of Haemophilia's Annual Global Survey 2017.
In the country-wise information, India arises with the most elevated count at almost 19,000.
The actual number is close to 2 lakh, as it is estimated that 80 percent of cases are not reported.
What does the World Federation of Haemophilia, or WFH, stand for?
A worldwide not-revenue driven association was laid out in 1963.
It is a worldwide organization of patient associations in 140 nations and has official acknowledgment from the World Wellbeing Association.
Its goal is to improve and maintain care for people all over the world who have inherited bleeding disorders.
A few significant FAQs:-
For what reason is hemophilia Day celebrated?
The World Federation of Haemophilia (WFH) first observed World Haemophilia Day on April 17, 1989, to commemorate the birthday of the WFH's founder, Frank Schnabel.
What is the World Haemophilia Day's theme?
World Hemophilia Day will be on April 17, 2023. This year, the event will focus on "Access for All: Bleed prevention is the worldwide standard of care.
What does hemophilia mean?
Most of the time, hemophilia is a condition in which the blood does not clot properly. This can cause bleeding on its own or as a result of an injury or surgery. Blood contains numerous proteins called thickening variables that can assist with halting dying.
Who gave hemophilia a name?
Then, in 1828, students Friedrich Hopff and Dr. Schonlein are credited with coining the term "haemorrhaphilia" for the condition, which was later abbreviated as "haemophilia."
Why is it referred to as hemophilia?
Hemophilia: what is it? A medical treatise in 1828 proposed the name "hemophilia," which means "love of blood" in its etymological sense.
What hue is observed on World Hemophilia Day?
The color of April 17 is: Red is it. Because World Haemophilia Day (WHD) is on April 17 The word "red" immediately conjures up associations like "danger," "stop!", even "blood."
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